Amy Julia Becker shares her experience of being the mother of Penny, a child who happens to have Downs Syndrome. While the diagnosis was a jolt to her and her husband, the learning curve has been one of joy and grace:
Penny is twenty-six months old. She says “no” with the gusto of any of her peers. She uses speech and sign language to communicate, and has an expressive vocabulary of more than two hundred words. She tells me what she did at school today, and the names of her friends, and what she would like for her afternoon snack. Penny loves music. She eats with a spoon and fork, albeit messily. She knows her shapes and colors. She gives lots of hugs. She says “sorry” after a time-out for pulling the cat’s fur or throwing her drink on the floor. Her facial features are distinctive. Beautiful, I think, but different. She’s very short, and she wasn’t able to walk steadily until a few months ago. In other words, she has Down syndrome, and she is developing, in many ways, like any other child. Asking whether I am at risk for having another child with Down syndrome (and statistically speaking, the answer is yes, my “risk” is 1 in 100), is akin to asking whether I am at risk for having another child with brown hair, with gorgeous green eyes, with her father’s hand-eye coordination or her mother’s love for books. It implies that Down syndrome is something separate from Penny, something that could be extracted if only we had the proper tools and procedures. But that extra chromosome is intrinsic to Penny’s being. To take away Down syndrome is to take away Penny.
And yet, as her thesis reveals, the medical community would take away Penny in a heartbeat -- according to their "standards of care."
I heard a report on NPR about a new ethics recommendation from the American College of Obstetricians and Gynecologists. ACOG has stated that doctors unwilling to provide abortions have an obligation to refer their patients to another physician who will provide the procedure. In the words of the spokesperson on NPR, “if a physician has a personal belief that deviates from evidence-based standards of care . . . they have a duty to refer patients in a timely fashion if they do not feel comfortable providing a given service.” [snip]
As a result, I am somewhat skeptical about the standard of care offered to these mothers. I’m also skeptical when “personal beliefs” are pitted against evidence, therefore implying that a physician who is unwilling to perform an abortion has defied (“deviated” from) the evidence. I understand that many women face unbearably difficult choices in regards to the health of their babies. Some choose to terminate pregnancies because they have been given information about the near certainty of physical abnormalities leading to their child’s early death. And yet many women choose to terminate a pregnancy based upon probabilities, fear, and misinformation.
Seems to be the standard fare in women's health, considering many reproductive issues. All under the banner of freedom.
Comments
“People have realized that the complete removal of the feminine element from the Christian message is a shortcoming from an anthropological viewpoint. It is theologically and anthropologically important for woman to be at the center of Christianity."
This is just another of the unintended consequences of the cultural acceptance of contraception and abortion! Men's sexuality has been robbed of its creative essence. It is now viewed as something that imposes a burden on women (when conception happens to occur), something used to control women or something that is purely recreational. Why would men bother?? In taking away their responsibility, we've also robbed them of their significance! In the big picture of humanity, men have been made into nothing more than a nuisance women have to figure out how to control in order to bring about the next generation. Men don't see it as their task to protect the vulnerable because they see themselves as the vulnerable ones. A few well preserved vials of sperm would make men entirely obsolete in the world's ethos today!!
That is astounding Robin, and good for you for standing up. At the heart of that matter, I think, is even worse than a gender mixing message. There is an increased sharper and sharper focus on the "self." Solid Catholic teaching returns our focus away from ourselves to Father, Son and Holy Spirit. The original sin, Eve denied her womanhood when she desired to be like "gods." Since the only god she knew was the Father. Where was Adam? He stood impotent... in other words, they were divorced. There's a young girl at Robin's son's high school who was just told that she is the center of the universe and it's a tragic disservice to her.
Ditto what Mary said! A lot of high schools have very poor math and science depts, for boys and girls. I also am educated as a chemical engineer, but chose to teach the two years before we had children because its hours were more suited to spending time with children. (I was looking ahead). When it came time and I was pregnant with our first, I realized that I did not want to leave him with someone else, and was able to stay home full time. I am not sure it would have been that easy if we were used to another engineering income and not just a private school teacher income. Also some of my first job offers were out on oil rigs - I had no interest in that at all even though I enjoyed my engineering classes and did well in them. No one discouraged me from an engineering job, on the contrary I got a lot of flack for my decision not to pursue an engineering career.
I've been lurking, but this is one that irritates me. Beats the heck out of me what these "barriers" are. I was educated as a chemical engineer, where 1/3 of our class was women. However, in electrical engineering, only 1 or 2 out of 30 were women. Is it possible that women are Just Not Interested in some areas? Nah, it must be The Man keeping us down so we must legislate (and, I agree -- when they say "legistlate", I hear "quota"). And actually, I have a friend that was also a chemical engineer. When she lost her job, she decided not to go back into engineering and started working from home so she could spend more time with her 3 kids. Also, if nothing else, there are all kinds of incentives for women to enter science and engineering -- scholarships not available to men, guaranteed housing on campuses that do not guarantee housing to the general population, etc. I think you hit the nail on the head when you said that schools in general are not preparing students for the hard sciences. It is truly a sad state of affairs, the lack of science education these days.